Responsible Genomic Data Sharing

Written By Xiaoqian Jiang, PhD
Responsible Genomic Data Sharing
  • Publsiher : Academic Press
  • Release : 15 July 2019
  • ISBN : 9780128161975
  • Pages : 384 pages
  • Rating : /5 from reviews
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Download or read book entitled Responsible Genomic Data Sharing by author: Xiaoqian Jiang, PhD which was release on 15 July 2019 and published by Academic Press with total page 384 pages . This book available in PDF, EPUB and Kindle Format. Recent technological advances have dramatically decreased the cost of genome sequencing, making it more affordable to collect genomic data from private citizens and patients, and subsequently employ this data to support new biomedical research and drug discovery. In Responsible Genomic Data Sharing: Challenges and Approaches international experts in genomics research, bioinformatics, and digital security analyze common challenges in genomic data sharing, privacy preserving technologies, and best practices for large-scale genomic data sharing. Practical case studies, including the Global Alliance for Genomics and Health, the Beacon Network, and the Matchmaker Exchange, are discussed in-depth, illuminating pathways forward for new genomic data sharing efforts across research and clinical practice, industry and academia. Fully examines policy and technical aspects of genomic data sharing in research and clinical practice Addresses privacy preserving technologies and how they can be applied to enable responsible genomic data sharing Employing illustrative case studies, analyzes emerging genomic data sharing efforts, common challenges, and lessons learned Features chapter contributions from international experts in responsible approaches to genomic data sharing

Responsible Genomic Data Sharing

Responsible Genomic Data Sharing
  • Author : Xiaoqian Jiang, PhD,Haixu Tang, PhD
  • Publisher : Academic Press
  • Release Date : 2019-07-15
  • Total pages : 384
  • ISBN : 9780128161975
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Summary : Recent technological advances have dramatically decreased the cost of genome sequencing, making it more affordable to collect genomic data from private citizens and patients, and subsequently employ this data to support new biomedical research and drug discovery. In Responsible Genomic Data Sharing: Challenges and Approaches international experts in genomics research, ...

Responsible Genomic Data Sharing

Responsible Genomic Data Sharing
  • Author : Xiaoqian Jiang,Haixu Tang
  • Publisher : Academic Press
  • Release Date : 2020-03-14
  • Total pages : 210
  • ISBN : 9780128161975
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Summary : Responsible Genomic Data Sharing: Challenges and Approaches brings together international experts in genomics research, bioinformatics and digital security who analyze common challenges in genomic data sharing, privacy preserving technologies, and best practices for large-scale genomic data sharing. Practical case studies, including the Global Alliance for Genomics and Health, the Beacon ...

Evaluating the Gap Between Research Ethics Review and Data Sharing in the Pediatric Infrastructure Sciences

Evaluating the Gap Between Research Ethics Review and Data Sharing in the Pediatric Infrastructure Sciences
  • Author : Vasiliki Rahimzadeh
  • Publisher : Unknown
  • Release Date : 2019
  • Total pages : 212
  • ISBN : 9780128161975
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Summary : "BACKGROUND: Clinical progress in genomics-enabled learning health systems relies on the production, use and exchange of data, including from children. The policies and practices guiding proportionate governance of such production, access and exchange are, however, markedly limited in the pediatric genomics space. The need for policy-practice coherence in genomic data ...

Genomic and Precision Medicine

Genomic and Precision Medicine
  • Author : Geoffrey S. Ginsburg,Huntington F Willard
  • Publisher : Academic Press
  • Release Date : 2016-11-22
  • Total pages : 398
  • ISBN : 9780128161975
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Summary : Genomic and Precision Medicine: Translation and Implementation highlights the various points along the continuum from health to disease where genomic information is impacting clinical decision-making and leading to more personalization of health care. The book pinpoints the challenges, barriers, and solutions that have been, or are being, brought forward to ...

Genomic Epidemiology Data Infrastructure Needs for SARS CoV 2

Genomic Epidemiology Data Infrastructure Needs for SARS CoV 2
  • Author : National Academies of Sciences, Engineering, and Medicine,Division on Earth and Life Studies,Board on Life Sciences,Health and Medicine Division,Board on Health Sciences Policy,Committee on Data Needs to Monitor the Evolution of SARS-CoV-2
  • Publisher : National Academies Press
  • Release Date : 2020-10-29
  • Total pages : 110
  • ISBN : 9780128161975
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Summary : In December 2019, new cases of severe pneumonia were first detected in Wuhan, China, and the cause was determined to be a novel beta coronavirus related to the severe acute respiratory syndrome (SARS) coronavirus that emerged from a bat reservoir in 2002. Within six months, this new virusâ€"SARS coronavirus 2 (SARS-CoV-2)â€"has ...

Progress and Challenges in Precision Medicine

Progress and Challenges in Precision Medicine
  • Author : Mukesh Verma,Debmalya Barh
  • Publisher : Academic Press
  • Release Date : 2016-12-22
  • Total pages : 344
  • ISBN : 9780128161975
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Summary : Progress and Challenges in Precision Medicine presents an insightful overview to the myriad factors of personalized and precision medicine. The availability of the human genome, large amounts of data on individual genetic variations, environmental interactions, influence of lifestyle, and cutting-edge tools and technologies for big-data analysis have led to the ...

Medical and Health Genomics

Medical and Health Genomics
  • Author : Dhavendra Kumar,Stylianos Antonarakis
  • Publisher : Academic Press
  • Release Date : 2016-06-04
  • Total pages : 358
  • ISBN : 9780128161975
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Summary : Medical and Health Genomics provides concise and evidence-based technical and practical information on the applied and translational aspects of genome sciences and the technologies related to non-clinical medicine and public health. Coverage is based on evolving paradigms of genomic medicine—in particular, the relation to public and population health genomics ...

Public Health Genomics

Public Health Genomics
  • Author : Paul Lacaze,Gareth Baynam
  • Publisher : Frontiers Media SA
  • Release Date : 2019-10-17
  • Total pages : 212
  • ISBN : 9780128161975
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Summary : The use of human genetic data has the potential to significantly improve healthcare, however a range of scientific, ethical and practical implementation barriers remain....

Sharing Clinical Trial Data

Sharing Clinical Trial Data
  • Author : Institute of Medicine,Board on Health Sciences Policy,Committee on Strategies for Responsible Sharing of Clinical Trial Data
  • Publisher : National Academies Press
  • Release Date : 2015-04-20
  • Total pages : 304
  • ISBN : 9780128161975
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Summary : Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include ...

Advancing Healthcare Through Personalized Medicine

Advancing Healthcare Through Personalized Medicine
  • Author : Priya Hays
  • Publisher : CRC Press
  • Release Date : 2017-02-24
  • Total pages : 167
  • ISBN : 9780128161975
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Summary : This innovative book provides a unique perspective on the biomedical and societal implications of personalized medicine and how it will help mitigate the healthcare crisis and rein in ever-growing expenditure. It introduces the reader to underlying concepts at the heart of personalized medicine - pharmacogenomics, targeted therapies and individualized diagnosis ...

International Handbook on Responsible Innovation

International Handbook on Responsible Innovation
  • Author : René von Schomberg,Jonathan Hankins
  • Publisher : Edward Elgar Publishing
  • Release Date : 2019
  • Total pages : 592
  • ISBN : 9780128161975
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Summary : The Handbook constitutes a global resource for the fast growing interdisciplinary research and policy communities addressing the challenge of driving innovation towards socially desirable outcomes. This book brings together well-known authors from the US, Europe and Asia who develop conceptual and regional perspectives on responsible innovation as well as exploring ...

Neuroethics

Neuroethics
  • Author : Judy Illes
  • Publisher : Oxford University Press
  • Release Date : 2017-07-20
  • Total pages : 672
  • ISBN : 9780128161975
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Summary : Over the last decade, there have been unparalleled advances in our understanding of brain sciences. But with the development of tools that can manipulate brain function, there are pressing ethical implications to this newfound knowledge of how the brain works. In Neuroethics: Anticipating theFuture, a distinguished group of contributors tackle ...

Data Matters

Data Matters
  • Author : National Academies of Sciences, Engineering, and Medicine,Policy and Global Affairs,Government-University-Industry Research Roundtable,Planning Committee for the Workshop on Ethics, Data, and International Research Collaboration in a Changing World
  • Publisher : National Academies Press
  • Release Date : 2019-01-28
  • Total pages : 102
  • ISBN : 9780128161975
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Summary : In an increasingly interconnected world, perhaps it should come as no surprise that international collaboration in science and technology research is growing at a remarkable rate. As science and technology capabilities grow around the world, U.S.-based organizations are finding that international collaborations and partnerships provide unique opportunities to ...

Pediatric Biomedical Informatics

Pediatric Biomedical Informatics
  • Author : John J. Hutton
  • Publisher : Springer
  • Release Date : 2016-10-08
  • Total pages : 450
  • ISBN : 9780128161975
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Summary : The book describes the core resources in informatics necessary to support biomedical research programs and how these can best be integrated with hospital systems to receive clinical information that is necessary to conduct translational research. The focus is on the authors’ recent practical experiences in establishing an informatics infrastructure in ...

Ethical Issues in Pediatric Hematology Oncology

Ethical Issues in Pediatric Hematology Oncology
  • Author : Kate A. Mazur,Stacey L. Berg
  • Publisher : Springer Nature
  • Release Date : 2019-11-27
  • Total pages : 229
  • ISBN : 9780128161975
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Summary : This book identifies the various ethical challenges that arise in pediatric hematology/oncology and provides the necessary tools to overcome these challenges. Aiming to expand upon and strengthen providers’ knowledge and experience in pediatric health care ethical issues, the text positions providers to be beneficial resources to faculty, staff, patients, ...