Principles and Practice in Biobank Governance

Written By Jane Kaye
Principles and Practice in Biobank Governance
  • Publsiher : Ashgate Publishing Company
  • Release : 23 June 2021
  • ISBN : 9780754678250
  • Pages : 292 pages
  • Rating : /5 from reviews
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Download or read book entitled Principles and Practice in Biobank Governance by author: Jane Kaye which was release on 23 June 2021 and published by Ashgate Publishing Company with total page 292 pages . This book available in PDF, EPUB and Kindle Format. Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Europe, America, Australia and Asia to focus on these challenges. Current models of governance are critiqued, principles and policies are debated, and new models and theoretical frameworks are presented through this intellectually stimulating, informative volume. This truly international volume offers new insights from a range of disciplinary perspectives and will be essential reading for policy makers and scholars across a range of social sciences, including sociology, bioethics, law and social policy.

Principles and Practice in Biobank Governance

Principles and Practice in Biobank Governance
  • Author : Jane Kaye,Mark Stranger
  • Publisher : Ashgate Publishing Company
  • Release Date : 2009
  • Total pages : 292
  • ISBN : 9780754678250
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Summary : Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with the pressing issues of privacy, consent, access ...

Principles and Practice in Biobank Governance

Principles and Practice in Biobank Governance
  • Author : Mark Stranger
  • Publisher : Routledge
  • Release Date : 2016-04-15
  • Total pages : 316
  • ISBN : 9780754678250
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Summary : Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with the pressing issues of privacy, consent, access ...

Hastings Law Journal

Hastings Law Journal
  • Author : Anonim
  • Publisher : Unknown
  • Release Date : 2012
  • Total pages : 212
  • ISBN : 9780754678250
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Summary : Read online Hastings Law Journal written by , published by which was released on 2012. Download full Hastings Law Journal Books now! Available in PDF, ePub and Kindle....

Governing Biobanks

Governing Biobanks
  • Author : Jane Kaye,Susan Gibbons,Catherine Heeney,Andrew Smart
  • Publisher : Bloomsbury Publishing
  • Release Date : 2012-02-03
  • Total pages : 380
  • ISBN : 9780754678250
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Summary : Biobanks are proliferating rapidly worldwide because they are powerful tools and organisational structures for undertaking medical research. By linking samples to data on the health of individuals, it is anticipated that biobanks will be used to explore the relationship between genes, environment and lifestyle for many diseases, as well as ...

Comparative Issues in the Governance of Research Biobanks

Comparative Issues in the Governance of Research Biobanks
  • Author : Giovanni Pascuzzi,Umberto Izzo,Matteo Macilotti
  • Publisher : Springer Science & Business Media
  • Release Date : 2013-01-30
  • Total pages : 339
  • ISBN : 9780754678250
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Summary : In the last few years, the boom in biobanking has prompted a lively debate on a host of interrelated legal issues, such as the Gordian knot of the ownership of biological materials, as well as privacy concerns. The latter are due to the difficulty of accepting that biological samples must ...

University of British Columbia Law Review

University of British Columbia Law Review
  • Author : University of British Columbia
  • Publisher : Unknown
  • Release Date : 2014
  • Total pages : 212
  • ISBN : 9780754678250
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Summary : Read online University of British Columbia Law Review written by University of British Columbia, published by which was released on 2014. Download full University of British Columbia Law Review Books now! Available in PDF, ePub and Kindle....

Ethics Law and Governance of Biobanking

Ethics  Law and Governance of Biobanking
  • Author : Deborah Mascalzoni
  • Publisher : Springer
  • Release Date : 2015-01-22
  • Total pages : 277
  • ISBN : 9780754678250
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Summary : Biobank research and genomic information are changing the way we look at health and medicine. Genomics challenges our values and has always been controversial and difficult to regulate. In the future lies the promise of tailored medical treatments and pharmacogenomics but the borders between medical research and clinical practice are ...

Alberta Law Review

Alberta Law Review
  • Author : Anonim
  • Publisher : Unknown
  • Release Date : 2013
  • Total pages : 212
  • ISBN : 9780754678250
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Summary : Read online Alberta Law Review written by , published by which was released on 2013. Download full Alberta Law Review Books now! Available in PDF, ePub and Kindle....

New Challenges for Biobanks

New Challenges for Biobanks
  • Author : Kris Dierickx
  • Publisher : Intersentia Uitgevers N V
  • Release Date : 2009
  • Total pages : 277
  • ISBN : 9780754678250
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Summary : The book is a collection of papers presented during an international conference, held in Leuven May 18-20, 2009, organized by the Centre for Biomedical Ethics and Law of the Catholic University of Leuven and the GeneBanC project....

GDPR and Biobanking

GDPR and Biobanking
  • Author : Santa Slokenberga
  • Publisher : Springer Nature
  • Release Date : 2021-06-23
  • Total pages : 212
  • ISBN : 9780754678250
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Summary : Read online GDPR and Biobanking written by Santa Slokenberga, published by Springer Nature which was released on . Download full GDPR and Biobanking Books now! Available in PDF, ePub and Kindle....

Governing Biobanks

Governing Biobanks
  • Author : Anonim
  • Publisher : Unknown
  • Release Date : 2011
  • Total pages : 338
  • ISBN : 9780754678250
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Summary : Biobanks are proliferating rapidly worldwide because they are powerful tools and organisational structures for undertaking medical research. By linking samples to data on the health of individuals, it is anticipated that biobanks will be used to explore the relationship between genes, environment and lifestyle for many diseases, as well as ...

Biobanking of Human Biospecimens

Biobanking of Human Biospecimens
  • Author : Pierre Hainaut,Jim Vaught,Kurt Zatloukal,Markus Pasterk
  • Publisher : Springer
  • Release Date : 2020-11-28
  • Total pages : 288
  • ISBN : 9780754678250
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Summary : Over the past 25 years, biobanks of human specimens have become a cornerstone for research on human health and have empowered the “omics “revolution that characterizes biomedical science in the XXIst Century. Today, biobanking of human specimens is a critical component of the interface between clinical practice and translational research, supporting ...

Governing Intellectual Property Rights Within Publicly Funded Biobanks

Governing Intellectual Property Rights Within Publicly Funded Biobanks
  • Author : Rajam Neethu
  • Publisher : Kluwer Law International
  • Release Date : 2019-06-21
  • Total pages : 352
  • ISBN : 9780754678250
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Summary : Governing Intellectual Property Rights Within Publicly Funded Biobanks R. Neethu The boom in biobanks and health databases as research infrastructures have evoked various legal and ethical debates. Since then numerous new developments have emerged such as digitalization, big-data research and artificial intelligence which has important implications for biobank-based research and ...

Biobanks and Tissue Research

Biobanks and Tissue Research
  • Author : Christian Lenk,Judit Sándor,Bert Gordijn
  • Publisher : Springer Science & Business Media
  • Release Date : 2011-07-30
  • Total pages : 238
  • ISBN : 9780754678250
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Summary : The research field of biobanks and tissue research is highly promising. Many projects around the globe are involved in the collection of human tissue and health data for research purposes. These initiatives are driven by the perspective of decisive breakthroughs in the knowledge of the genetic pathways involved in widespread ...

The Governance of Genetic Information

The Governance of Genetic Information
  • Author : Heather Widdows,Caroline Mullen
  • Publisher : Cambridge University Press
  • Release Date : 2009-09-03
  • Total pages : 235
  • ISBN : 9780754678250
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Summary : This volume suggests alternative ethical frameworks and models of regulation relating to the governance of genetic information....