Ethical Issues in Governing Biobanks

Written By Nikola Biller-Andorno
Ethical Issues in Governing Biobanks
  • Publsiher : Routledge
  • Release : 13 May 2016
  • ISBN : 1317141482
  • Pages : 268 pages
  • Rating : /5 from reviews
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Download or read book entitled Ethical Issues in Governing Biobanks by author: Nikola Biller-Andorno which was release on 13 May 2016 and published by Routledge with total page 268 pages . This book available in PDF, EPUB and Kindle Format. Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in 'biobanks'. Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict and consensus in the regulatory and ethical frameworks that have been developed to govern biobanks. Ethicists from the Department of Ethics, Trade, Human Rights and Health Law (ETH) of the World Health Organization, the Institute of Biomedical Ethics of Geneva University and the Institute of Biomedical Ethics of the University of Zurich, with the support of the Geneva International Academic Network (GIAN), examine the conditions under which genetic databases can be established, kept, and made use of in an ethically acceptable way. In addition to a comprehensive review of the scientific literature and a comparative analysis of existing normative frameworks, they present the results of in-depth interviews with experts around the world concerning the most unresolved and controversial issues. The results of that study, combined with their normative analysis, leads to recommendations for a better international framework.

Ethical Issues in Governing Biobanks

Ethical Issues in Governing Biobanks
  • Author : Nikola Biller-Andorno,Alexander M. Capron
  • Publisher : Routledge
  • Release Date : 2016-05-13
  • Total pages : 268
  • ISBN : 1317141482
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Summary : Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in 'biobanks'. Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict ...

Ethical Issues in Governing Biobanks

Ethical Issues in Governing Biobanks
  • Author : Nikola Biller-Andorno,Alexander M. Capron
  • Publisher : Routledge
  • Release Date : 2016-05-13
  • Total pages : 268
  • ISBN : 1317141482
GET BOOK

Summary : Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in 'biobanks'. Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict ...

Ethical Issues in Governing Biobanks

Ethical Issues in Governing Biobanks
  • Author : Bernice Elger
  • Publisher : Ashgate Publishing, Ltd.
  • Release Date : 2008
  • Total pages : 257
  • ISBN : 1317141482
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Summary : "The book will be a valuable resource for researchers and practitioners working in the development, maintenance and regulation of biobanks, and for ethicists and regulators developing guidance for ethical management of this important new scientific resource."--BOOK JACKET....

New Challenges for Biobanks

New Challenges for Biobanks
  • Author : Kris Dierickx
  • Publisher : Intersentia Uitgevers N V
  • Release Date : 2009
  • Total pages : 277
  • ISBN : 1317141482
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Summary : The book is a collection of papers presented during an international conference, held in Leuven May 18-20, 2009, organized by the Centre for Biomedical Ethics and Law of the Catholic University of Leuven and the GeneBanC project....

Journal of the American Medical Association

Journal of the American Medical Association
  • Author : Anonim
  • Publisher : Unknown
  • Release Date : 2009-05
  • Total pages : 212
  • ISBN : 1317141482
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Summary : Read online Journal of the American Medical Association written by , published by which was released on 2009-05. Download full Journal of the American Medical Association Books now! Available in PDF, ePub and Kindle....

Ethics Law and Governance of Biobanking

Ethics  Law and Governance of Biobanking
  • Author : Deborah Mascalzoni
  • Publisher : Springer
  • Release Date : 2015-01-22
  • Total pages : 277
  • ISBN : 1317141482
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Summary : Biobank research and genomic information are changing the way we look at health and medicine. Genomics challenges our values and has always been controversial and difficult to regulate. In the future lies the promise of tailored medical treatments and pharmacogenomics but the borders between medical research and clinical practice are ...

Biobanks

Biobanks
  • Author : Herbert Gottweis,Alan Petersen
  • Publisher : Routledge
  • Release Date : 2008-04-28
  • Total pages : 248
  • ISBN : 1317141482
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Summary : In recent years, a number of large population-based biobanks – genetic databases that combine genetic information derived from blood samples with personal data about environment, medical history, lifestyle or genealogy – have been set up in order to study the interface between disease, and genetic and environmental factors. Unsurprisingly, these studies have ...

The Ethics of Biomedical Big Data

The Ethics of Biomedical Big Data
  • Author : Brent Daniel Mittelstadt,Luciano Floridi
  • Publisher : Springer
  • Release Date : 2016-08-03
  • Total pages : 480
  • ISBN : 1317141482
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Summary : This book presents cutting edge research on the new ethical challenges posed by biomedical Big Data technologies and practices. ‘Biomedical Big Data’ refers to the analysis of aggregated, very large datasets to improve medical knowledge and clinical care. The book describes the ethical problems posed by aggregation of biomedical datasets ...

Governing Intellectual Property Rights Within Publicly Funded Biobanks

Governing Intellectual Property Rights Within Publicly Funded Biobanks
  • Author : Rajam Neethu
  • Publisher : Kluwer Law International B.V.
  • Release Date : 2019-06-21
  • Total pages : 352
  • ISBN : 1317141482
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Summary : Governing Intellectual Property Rights Within Publicly Funded Biobanks R. Neethu The boom in biobanks and health databases as research infrastructures have evoked various legal and ethical debates. Since then numerous new developments have emerged such as digitalization, big-data research and artificial intelligence which has important implications for biobank-based research and ...

Advances in Biobanking Practice Through Public and Private Collaborations

Advances in Biobanking Practice Through Public and Private Collaborations
  • Author : Elena Salvaterra ,Julie Corfield
  • Publisher : Bentham Science Publishers
  • Release Date : 2017-07-10
  • Total pages : 135
  • ISBN : 1317141482
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Summary : Advances in Biobanking Practice Through Public and Private Collaborations presents an analysis of methods and current models of partnership between public and private organizations designed to improve biobanking practices in European countries. Chapters describe the state-of-the-art of public-private collaborations in biobanking on a global scale, innovative approaches to public-private partnership ...

Trust in Biobanking

Trust in Biobanking
  • Author : Peter Dabrock,Jochen Taupitz,Jens Ried
  • Publisher : Springer Science & Business Media
  • Release Date : 2012-02-22
  • Total pages : 266
  • ISBN : 1317141482
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Summary : Biobanks are promising instruments of biomedical research and of transnational medicine in particular. Ethical, legal and social issues associated with biobanking, however, have recently led to a more critical view on this concept. All efforts addressing these concerns have been grounded on well-established standards of biomedical ethics such as informed ...

Issues Studies

Issues   Studies
  • Author : Anonim
  • Publisher : Unknown
  • Release Date : 2007
  • Total pages : 212
  • ISBN : 1317141482
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Summary : Read online Issues Studies written by , published by which was released on 2007. Download full Issues Studies Books now! Available in PDF, ePub and Kindle....

Governing Biobanks

Governing Biobanks
  • Author : Jane Kaye,Susan Gibbons,Catherine Heeney,Andrew Smart
  • Publisher : Bloomsbury Publishing
  • Release Date : 2012-02-03
  • Total pages : 380
  • ISBN : 1317141482
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Summary : Biobanks are proliferating rapidly worldwide because they are powerful tools and organisational structures for undertaking medical research. By linking samples to data on the health of individuals, it is anticipated that biobanks will be used to explore the relationship between genes, environment and lifestyle for many diseases, as well as ...

Law Medicine and Ethics

Law  Medicine and Ethics
  • Author : Patricia A. King,Judith Areen,Lawrence Ogalthorpe Gostin
  • Publisher : Unknown
  • Release Date : 2006
  • Total pages : 666
  • ISBN : 1317141482
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Summary : This reader is a spin-off publication from Law, Science and Medicine, Third Edition. It offers an interdisciplinary perspective on ethical and moral questions raised by medicine and introduces undergraduates to the manner in which law and policy shape society's views on birth, death, human experimentation, reproduction, use of genetic information, ...

Ethics and Governance of Biomedical Research

Ethics and Governance of Biomedical Research
  • Author : Daniel Strech,Marcel Mertz
  • Publisher : Springer
  • Release Date : 2016-05-09
  • Total pages : 225
  • ISBN : 1317141482
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Summary : In this book, scholars with different disciplinary and national backgrounds argue for possible answers and analyse case studies on current issues of governance in biomedical research. These issues comprise among others the research-care distinction, risk evaluation in early human trials, handling of incidental findings, nocebo effects, cluster randomized trials, publication ...