Comparative Issues in the Governance of Research Biobanks

Written By Giovanni Pascuzzi
Comparative Issues in the Governance of Research Biobanks
  • Publsiher : Springer Science & Business Media
  • Release : 30 January 2013
  • ISBN : 3642331165
  • Pages : 339 pages
  • Rating : /5 from reviews
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Download or read book entitled Comparative Issues in the Governance of Research Biobanks by author: Giovanni Pascuzzi which was release on 30 January 2013 and published by Springer Science & Business Media with total page 339 pages . This book available in PDF, EPUB and Kindle Format. In the last few years, the boom in biobanking has prompted a lively debate on a host of interrelated legal issues, such as the Gordian knot of the ownership of biological materials, as well as privacy concerns. The latter are due to the difficulty of accepting that biological samples must be completely anonymous without making it practically impossible to exploit their information potential. The issues also include the delicate role and the changing content of the donor’s “informed consent” as the main legal tool that may serve to link the privacy and property interests of donors with the research interests and the set of principles that should be at the core of the biobanking practice. Lastly, the IP issues and the patentability of biological samples as well as the protection of databases storing genetic information obtained from the samples are covered. Collecting eighteen essays written by eminent scholars from Italy, the US, the UK and Canada, this book provides new solutions to these problems. From a comparative viewpoint, it explores the extent to which digital technology may assist in tackling the numerous regulatory issues raised by the practice of biobanking for research purposes. These issues may be considered and analyzed under the traditional paradigms of Property, Privacy, Informed Consent and Intellectual Property.

Comparative Issues in the Governance of Research Biobanks

Comparative Issues in the Governance of Research Biobanks
  • Author : Giovanni Pascuzzi,Umberto Izzo,Matteo Macilotti
  • Publisher : Springer Science & Business Media
  • Release Date : 2013-01-30
  • Total pages : 339
  • ISBN : 3642331165
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Summary : In the last few years, the boom in biobanking has prompted a lively debate on a host of interrelated legal issues, such as the Gordian knot of the ownership of biological materials, as well as privacy concerns. The latter are due to the difficulty of accepting that biological samples must ...

Ethics and Governance of Biomedical Research

Ethics and Governance of Biomedical Research
  • Author : Daniel Strech,Marcel Mertz
  • Publisher : Springer
  • Release Date : 2016-05-09
  • Total pages : 225
  • ISBN : 3642331165
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Summary : In this book, scholars with different disciplinary and national backgrounds argue for possible answers and analyse case studies on current issues of governance in biomedical research. These issues comprise among others the research-care distinction, risk evaluation in early human trials, handling of incidental findings, nocebo effects, cluster randomized trials, publication ...

Biobanks

Biobanks
  • Author : Herbert Gottweis,Alan Petersen
  • Publisher : Routledge
  • Release Date : 2008-04-28
  • Total pages : 248
  • ISBN : 3642331165
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Summary : In recent years, a number of large population-based biobanks – genetic databases that combine genetic information derived from blood samples with personal data about environment, medical history, lifestyle or genealogy – have been set up in order to study the interface between disease, and genetic and environmental factors. Unsurprisingly, these studies have ...

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  • Publisher : Intersentia Uitgevers N V
  • Release Date : 2009
  • Total pages : 277
  • ISBN : 3642331165
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Summary : The book is a collection of papers presented during an international conference, held in Leuven May 18-20, 2009, organized by the Centre for Biomedical Ethics and Law of the Catholic University of Leuven and the GeneBanC project....

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  • Author : Anonim
  • Publisher : Unknown
  • Release Date : 2008
  • Total pages : 212
  • ISBN : 3642331165
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Summary : Read online Anticancer Research written by , published by which was released on 2008. Download full Anticancer Research Books now! Available in PDF, ePub and Kindle....

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  • Author : Anonim
  • Publisher : Unknown
  • Release Date : 2007
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  • ISBN : 3642331165
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Summary : Read online Current Law Index written by , published by which was released on 2007. Download full Current Law Index Books now! Available in PDF, ePub and Kindle....

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  • Publisher : CSHL Press
  • Release Date : 2007
  • Total pages : 472
  • ISBN : 3642331165
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Summary : Genetic Variation: A Laboratory Manualis the first compendium of protocols specifically geared towards genetic variation studies, and includes thorough discussions on their applications for human and model organism studies. Intended for graduate students and professional scientists in clinical and research settings, it covers the complete spectrum of genetic variation—from ...

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  • Author : Michael D. A. Freeman
  • Publisher : Current Legal Issues
  • Release Date : 2008
  • Total pages : 482
  • ISBN : 3642331165
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Summary : Current Legal Issues, like its sister volume Current Legal Problems, is based upon an annual colloquium held at University College London. Each year, leading scholars from around the world gather to discuss the relationship between law and another discipline of thought. Each colloquium examines how the external discipline is conceived ...

Human Genetic Biobanks in Asia

Human Genetic Biobanks in Asia
  • Author : Margaret Sleeboom-Faulkner
  • Publisher : Routledge
  • Release Date : 2008-11-19
  • Total pages : 224
  • ISBN : 3642331165
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Summary : This volume investigates human genetic biobanking and its regulation in various Asian countries and areas, including Japan, Mainland China, Taiwan, Hong Kong, India and Indonesia.. It sheds light on how cultural, socio-political and economic factors influence the set-up of bioethical regulation for human genetic biobanks and how bioethical sensitivities surrounding ...

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  • Author : Anonim
  • Publisher : Unknown
  • Release Date : 2007
  • Total pages : 212
  • ISBN : 3642331165
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Summary : Read online CORDIS Focus written by , published by which was released on 2007. Download full CORDIS Focus Books now! Available in PDF, ePub and Kindle....

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  • Author : Anonim
  • Publisher : Unknown
  • Release Date : 2008
  • Total pages : 212
  • ISBN : 3642331165
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Summary : Read online Development and Society written by , published by which was released on 2008. Download full Development and Society Books now! Available in PDF, ePub and Kindle....

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American Law in the 21st Century
  • Author : John C. Reitz,David S. Clark
  • Publisher : Unknown
  • Release Date : 2006
  • Total pages : 754
  • ISBN : 3642331165
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Summary : The International Congress of Comparative Law is held "under the auspices of the International Academy of Comparative Law."--Preface....

Index to Legal Periodicals Books

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  • Author : Anonim
  • Publisher : Unknown
  • Release Date : 2005
  • Total pages : 212
  • ISBN : 3642331165
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Summary : Read online Index to Legal Periodicals Books written by , published by which was released on 2005. Download full Index to Legal Periodicals Books Books now! Available in PDF, ePub and Kindle....

The British National Bibliography

The British National Bibliography
  • Author : Arthur James Wells
  • Publisher : Unknown
  • Release Date : 2009
  • Total pages : 212
  • ISBN : 3642331165
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Summary : Read online The British National Bibliography written by Arthur James Wells, published by which was released on 2009. Download full The British National Bibliography Books now! Available in PDF, ePub and Kindle....

Public Understanding of Science

Public Understanding of Science
  • Author : Anonim
  • Publisher : Unknown
  • Release Date : 2009
  • Total pages : 212
  • ISBN : 3642331165
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Summary : Read online Public Understanding of Science written by , published by which was released on 2009. Download full Public Understanding of Science Books now! Available in PDF, ePub and Kindle....